Cats got Cystitis, Child’s got Autism, Hubby’s got a Cold – somebody pass the vodka..

Helllo there! Been a while since I put pen to paper, or finger to keyboard to be more precise! Lets not forget we live in a modern world full of marvelous technology, most  of which seems to have an IQ higher than mine, ahem!

So, where did we get to? Lets see now, hmmm. Well frankly I forget, which may be due to the chaos that is my life, or possibly the Wine, its probably the Wine to be fair.  But anyway, he have just had the offsprings parents evening, and it was a blinder!! Now don’t get me wrong, they didnt inform us that he has invented time travel, or split the atom. But they did tell us that he is happy, and that’s enough. Would have been quite happy for them to stop there, and could have left grinning from ear to ear. Because you see that’s all its ever been about, allowing him to be happy, and not to wake in the morning, with tears in his eyes, and hear him beg me not to send him to school. Most of us are parents, and regardless of our level of parental skill, nobody wants to hear their child with fear in their voice and tears in their eyes. It certainly put a downer on my morning I can tell you!

But back to Parents Evening, apparently his writing skills are akin to watching a three legged drunk spider drag itself across the page, which frankly is still a step up from his Daddys handwriting (brilliant though he may be the Hubby writes with all the elegance of a pissed goldfish) His spelling is coming on, but I never need worry about him joining the Spelling Bee Club (lucky escape possibly), and his social skills thought not fabulous are definitely improving. He does however enjoy Maths….excuse me whilst I nod off for 5 minutes….

This makes me chuckle, as I hated maths, loathed it in fact, and still cant work out even simply sums without the use of my smart phone, which is clearly smarter than me. The Hubby on the other hand finds it amusing to perform complex maths equations in his head, yawn…..

But lets be honest, it never hurts to be good at Maths, it will do me, he’s happy and likes Sums – Nuff said

So all in all, the little dude has come on in leaps and bounds and seems to be finding his feet. My gratitude towards his two very VERY special  Teachers is beyond description. The difference it has made to have two individuals who clearly care about him, try very hard to understand his needs, and go above and beyond what I ever thought or imagined possible, is overwhelming. I dont think they will every truly understand the sheer joy they have brought into our home over the last 6 weeks. We will never be able to thank them enough, but I hope that they understand the gateway they have offered to our little boy, and how they have opened his world up to him.

On to the Title of today’s little epic! We have three cats, I’m sure I’ve mentioned them. Well the youngest has just developed Cystitis, which is pretty similar in female cats to that which female humans get, although obviously the cat doesn’t make a midnight dash to Tesco Pharmacy and launch herself over the counter, grab the pharmacist by the neck and screech “Give me some Cystemme!!” Having said that Cystemme is about £5.95 a box, the bill from the Vet was £300 odd quid all in. Haven’t told the Hubby yet, going to have to palm it off as “school shoes and uniform darling” – course its never going to work, but Hubby is used to me making stuff up, wouldn’t want to disappoint.

This is doubly tragic as she is not covered by our Pet Insurance, which “officially” speaking is my fault as i should have paid attention when I read the policy, but I’m pretty sure I can find an “out” for that one too. And the last part of today’s title? the Hubby also has a Cold coming, so therefore is dying of pain and levels of agony unknown to human kind, or as most women would call it, ” a bit of a sniffle”……

Now  I have posted a picture below I would like you all to look at closely, with regard to the link it has with Autism and ASD  in general….Well there is no actual link, but he is awfully easy to look at, and they do say everyone should have a hobby…….sigh…….

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I do love Trash TV, I don’t often watch the TV, its more of an ornament than a functional item in our house, but I do like a bit of True Blood, its pure eye candy!

But onto a real poster about Autism, this one is a corker, in fact I will post it below so you can see:

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https://www.facebook.com/worldautismawarenessday

This really does say it all, I had a quick count up the other day of the number of appointments we have had over the last three years, and we are well into the 30+ number. Sleepless nights I didn’t bother counting, seemed pretty redundant as I have looked like the Walking Dead for the last 6 months so obviously its quite a few!  But there is never a day I don’t think my little bundle of quirky is worth it. Cannot imagine ever thinking that he isn’t.

I’ve made some great friends through this Autism business, some old one who have stuck by me, some news ones who have brought with them information and support, and we have met some wonderful insightful people who have given us the strength to keep going when all seemed bleak. I will always be grateful to them, and as the journey is far far FAR from over, I hope they all stick around.  We have also met a few completel Twats who feel their opinion is valid, because they have no children, and no experience of any kind of special need, but apparently this doesn’t infringe on their right to spout prolifically on the whys and wherefores of ASD.

There is a very famous book; “How to make Friends and Influence People” – its a good read, I have never taken it particularly seriously, but since all this ASD stuff kicked off its made me want to write a sequel entitled “How to make Friends and Alienate Twats” – granted its not as catchy, and probably wouldn’t sit as well in Waterstones window, but I feel it might sell….

Am I snotty, arrogant, determined, focused, driven, obsessed, aggressive, and a bitch? Probably, do I care? No, a great bit resounding No. I do what I have to do to have my child’s voice heard, I will never apologise for that, and I will never let anyone stand in my way. This is not a Popularity Contest, this is a fight for my child’s right to have the same opportunities as everyone else’s, if you don’t like it? OK, but don’t get in my way, I don’t put my nose in anybodies else’s business, so don’t be all up in mine.

So today was a good day,  yesterday was pretty cool too, and tomorrow looks bright. There are many people who have helped us get to this day, its a Team effort, always is.  I am sure will will have dark days ahead, you have to be realistic with these kids, but the positive bright days make everything easier, and its those feelings you have to hold onto. Not always easy, but you have to try.

So to those of you who have let me cry on your shoulders, rant in your kitchens, spit hatred at the system on the school run, curse like a sailor in  your living room, fed me copious amounts of diet coke, and let me laugh till I cry as you wore my bra on your head, I say a big Thank you, for you are part of that group of people who have made my child happy, and for that I will always be eternally grateful:)

I have not failed. I’ve just found 10,000 ways that won’t work. ~Thomas Edison

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Here is a basic definition of high functioning autism: Thank you mighty Wikipedia!

“High-functioning autism (HFA) is a term applied to people with Autism who are deemed to be cognitively “higher functioning” (IQ>70) than other people with autism. Individuals with HFA or Asperger Syndrome, exhibit deficits in areas of communication, emotion recognition and expression, and social interaction.  There is no consensus on the definition…”

As you can see, its not black and white, even the Experts cant agree, so how on earth am I supposed to figure it out? I’m just his Mum, I can barely make it from my front door to the car without having an emotional crisis. (maybe I’ve got it too…..oh no that might just be the Sauvingnon again). Its easy to shrug Autism off as a “fad”,  an, “on trend diagnosis”, or a reason for excusing your child’s apparent bad behavior. But as a wise man once said,

“Don’t judge a person until you have walked a mile in their shoes” …..

Well mine are 5′ killer heels, so best you get practicing! 

As you may be able to tell, today has not been a great day. There are brief times when you realise you have sunk a bit lower than you thought. This light-bulb moment came to me when I was sat on the sofa watching “Pet Rescue” just before starting work, and a dodgy looking mouse had to be sent to Mouse Heaven.  Now I would be the first to say I’m a soft touch when it comes to anything soft and furry, but a scrawny grey mouse?  not a cute white one that looks like it could sit up and talk to you, “Disney Style”, possibly with a catchy rap to round things off.

No this was a grey, saggy, frankly pretty knackered looking creature that had seen better days. But I howled like a baby. You know things are not going so well when the death of a small rodent brings you to chest beating tears!  Anyway below is a picture of a baby elephant. There’s no real link, but apparently I’m not putting enough pictures in my blog…….well actually there sort of is a link!

We took Charlie Banana to Chester Zoo a couple of years ago, went the whole 9 yards and thought, well its too far to go in a day so we will stay overnight. Found a lovely hotel, quiet Country House  style “pile”.  All very Sense and Sensibility, all it needed was Judy Dench to come floating out in a full Edwardian costume and we could have been on a film set. But anyway, we rock up, go to our room, immediately nick all the toiletries and the coffee and tea and hot chocolate sachets (I cant help it!! – they put it in the bill???!!!). The overnight stay goes pretty well, dinner was a bit of a trial as the restaurant was a bit noisy and busy but we managed, found a very quiet, out of the way table in the corner and sat the offspring between us so he felt “safe”.

Got up the next morning and trotted off to the Zoo, to be promptly informed when we got there “I want to go home” Now I know what your thinking  “Just make the little toe-rag walk round?  kids are kids and like to whinge!” But that’s not the case with ours (well OK sometimes it is, but its hard to know “exactly” when) This is one of the things I find hardest about having a child with Autism, you never really know when they are just being little toe-rags, and when what is bothering them is a genuine fear or total inability to understand. Can you afford to make the mistake?  If the answer is Yes then your a braver person than I.

In other matters, somebody told me today I sound like Kathy Lette when I blog, which is very flattering, so thank you for that:)  I also got sent an  article today entitled “How to write a top blog”. No mention was made of sitting on the sofa, knocking back industrial size glasses of vino (I’m not an alcoholic, honest) and bemoaning the fact the cat, “Always”, chooses to chuck up on the carpet rather than the laminate. I wouldn’t mind this so much, but we only have one rug in the “entire house!”.  It would be harder to “hit” the rug, than miss it!  I swear the cat saunters downstairs after a trying 18 hour nap, and thinks;  “Yep, that’s looks nice and clean, I’ll think I’ll just vomit up a furball”

But back to my point, it was a really interesting article, but I think was it was designed to aid you more in”making money” from your blog, rather than attempting to use it as a cheap form of therapy. Although as the Hubby pointed out, its “not that cheap when you drink £15 bottles of wine whilst doing it!” – I like to think I made my point clearly when I actually “went” for a therapy session and presented him with a bill for £125. Therapy didnt work so well for me, I found myself just wanting to bang my  head against the wall every time they asked me “how do you “feel” about that? – maybe its me, maybe I’m just not cut out for therapy, but  my over-riding desire was to get into the filing cabinet in her office, lock the door and sniff the Tipex…

Tomorrow is Sports Day! – or not. Having had numerous debates, endless questions, and even at one stage a re-enactment of the event itself, we have come to the conclusion that Charlie Banana will be staying home tomorrow.  Its just not worth the aggro, or the angst, or the anxiety, or any other number of words that being with “A” ( I feel like Big Bird on Sesame Street). Its a Sports Day, not Mastermind (which he might do better at ironically)  I always sucked at Sports Day, mostly because I developed Katie Price like boobs at the tender age of 13 and suddenly found I had myself a fan base consisting almost entirely of 16 year old boys….but that’s a whole other blog!!

Today has been a bad day, I have felt tired, worthless, useless, and basically like a failed parent. But a text message to some girlfriends resulted in a “Rescue Visit” this evening, which I know will make me feel better, and also somewhat like the dodgy mouse as there is always a risk with these two particular friends that they might just have me “put to sleep”….;)

But the end result of today will be that its yet another day, like many before it, and I am sure many more that will follow it. Some are good days, some are bad. But like most other things in Life, you don’t have any choices, there is not getting off this particular train. Course had I known at the start I might never have got on, but then I wouldn’t have the little fella that I do, and despite all the things that he isn’t, there are a million more perfect ,wonderful, bright and beautiful things that he is.

So as you can see, this is why the title of today’s Blog is what is, because I haven’t failed, I just haven’t “quite” figured out how to cope yet, and until then?   I will buy shoes, drink wine, and remember that things could be worse…..but to be strictly honest mostly I will just buy shoes.

It beats Therapy...
It beats Therapy…